Home

We finally made it home. We are so blessed we could come home so early. 

Let me update.

So Harper had some blood in his stool the nurses and doctors were concerned about. They were afraid he had an infection or worse pneumatosis. He had to have abdomen x-rays after a feed 2 times a day. They weren't able to find anything unusual in his stomach. He wasn't able to eat for 36 hours from Friday to Saturday. He was miserable to say the least. So were we. It's so hard to see your baby starving. The doctors decided to let him have breastmilk again and see if the blood appeared again. It did. So then we had to assume he had an allergy to something in my milk. Because the x-rays didn't show swelling or air in his tummy we had to assume my milk was the issue. We started him on an allergy free formula and the blood went away. 

Guess what that means? No dairy whatsoever for me. 

Since then he has been so good. He is in a little bit of pain every once in awhile, but over all he is perfect. I couldn't be luckier to have such a warrior.

Because his diapers were clean, he was gaining weight, his follow-up echogram of his heart looked good, and his incision is healing they were able to send us home yesterday. We were thrilled. Only 6 days after surgery he gets to come home. (I think Andrew and I are pretty excited to not have to stay at the hospital over night with him anymore, we were pretty worn out)! 

Once we got home we were able to get him all set up with oxygen. Not going to lie the oxygen scares me just a little bit, but I'm getting use to it. 

Harper came home with his feeding tube and oxygen. He needs his feeding tube until he can eat all of his bottle by mouth consistently and still gain weight. Once he can do that, we can take it out. We are hoping he is feeling a little better with his new procedure to eat better. He needs the oxygen to help the blood flow smoothly after his surgery. We will see the doctors in 2 weeks to check if he can go off of the oxygen. 

He is doing so good at home. Other than pain every once in awhile, he is a pretty happy boy.

First feed after starvation

Showing off my scar

He got a mobile in his crib and loved it

Cute new outfit to go home in

No more wires all over him

He loved the wagon ride to the car

On our way